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"Friendship ceremony" before November 20, and Matt and Saibulinnuo hugged. Medical devices placed around the room, only a wall of posters to remind people, this is a young girl's bedroom edition pictures crush Saibulinna months by the People 's photo courtesy Matt finally asked her courage and own appointments, and Saibulinna agreed without hesitation. They go to the movies, go shopping. If you know that he was suffering from a terrible incurable disease, it is dying,tiffany outlet, Matt react? Saibulinnuo unthinkable. Friendship ceremony site, Matt opened the box, there is a pair of silver rings. "Find your size is not easy." Matt put ring on the ring finger Saibulinnuo. Saibulinnuo efforts to get another ring, but weakly trembling fingers. Matt to help her pick up the ring, set in their own hands. The crowd applauded, many people shed tears. In August,http://zjwc0759.com/home.php?mod=space&uid=26216, Saibulinnuo have had tracheotomy, ventilator breathing rely. In the night before her death, Matt stayed with her all night, holding her hand, over and over again that she will get better. The next morning, Saibulinnuo died in his sleep. Matt leaned down and kissed her forehead. "Thank you for saving me!" He whispered softly.
"Amyotrophic lateral sclerosis", the English referred ALS. Since the "ALS" patients did not sensory nerves are damaged, still retain intelligence, memory, perception. They watched their muscle atrophy, weakness, paralysis until the body gradually been frozen, and therefore known as "getting cold."
Most of the "getting cold" and intelligent, attentive, which is destined to bear the pain of their very grave. 16-year-old is the youngest US Saibulinna "getting cold." November 30 this year, 15-year-old boyfriend Saibulinnuo at Matt's company, completed his short life. However, this crystal pure love between two people,http://comdfran.fr/forum/viewtopic.php?pid=195770#p195770, let Saibulinnuo courage to face death, but also to emit the most beautiful light of life.
16-year-old American girl died on November 30. Saibulinnuo onset age of 15, became the youngest "getting cold." This is not only a terminally ill patient to face the disease brave struggle, and her boyfriend Matt Saibulinnuo also touched countless people's pure love story.
Her grandmother, mother are "getting cold"
In many ways, Saibulinna are just an ordinary girl. She obsessed with social networking sites, like playing volleyball and softball, also loves ice skating and roller coaster. Saibulinnuo grandmother and mother because of "people getting cold" disease and died, she had to live with Grandma and Grandpa.
June 2009, began to complain of ear pain Saibulinna. She spoke nasal increasingly heavy, difficult to understand. Grandparents took her to see a specialist, but did not find any problems. She also had a night sleep lab. On the Facebook page, Saibulinnuo wrote: "The body then all kinds of wires, I simply can not fall asleep."
He said,http://juan.linkko.com/node/add/article, "She was a little like my grandmother."
Another reason for her to sleep may be, in the checks beginning November 6, 2009, in finally found the courage to ask her out.
Matt's growth is not smooth sailing. He was suspected of suffering from autism, the primary school was diagnosed with mild dyslexia. Because talk is not agile, often being bullied at school. Matt witnessed with pancreatic cancer grandmother slowly die in the process, he began to not listen to their parents, and juvenile delinquents mixed. Fortunately, after high school, Matt re-found self, he fell in love with football and American football, the girls also be popular.
Saibulinnuo left one,louboutin homme, small one-year-old Matt and she became classmates. Matt found that "the death of her own grandmother a bit like - aggressive lively eyes of God." Crush on her a few months later, Matt finally Saibulinna catch it, she requested her own appointment, and Saibulinna agreed without hesitation. They go to the movies, go shopping. Saibulinnuo make every effort to hide their symptoms for Matt, but she was sick every day weight, speak more and more difficult to understand, there have been difficulties in swallowing saliva.
When diagnosed 15 years old,http://www.sportmedicine.ru, she cried
Last December, Saibulinnuo has some difficulty moving his tongue, arms, there have been signs of muscle atrophy. Her weight less than 48 kg, and 1 meter 67 tall is not commensurate. When you hear a doctor say, "getting cold" and the word, Saibulinnuo crying. She later wrote in the log: "Sometimes I have to ask, why me?"
Saibulinnuo the disease told his best friend, but also the courage to say it to Matt. February 6 this year is her 16th birthday, she went to a birthday party picked a beautiful green satin skirt. Saibulinnuo for love movie "Twilight" in the human girl and a vampire among youth ecstatic. Matt is celebrating her 16th birthday, she bought specifically for the "Twilight" in the couple rings replica. Engraved on the ring on this sentence: "I leave you how to do"?
The party, Saibulinnuo the two friends put Matt called out, telling him Saibulinna suffering from a "people getting cold" disease. Matt is not clear what "getting cold" disease, but he knows the situation is very bad. In the pool, he sat down and began to cry. Saibulinnuo the pool to find Matt. "You want to leave me?" She asked. "I will never leave you," Matt replied, "No matter what happens." They hugged, burst into tears.
He began acting as her translator
Matt told her mother things. She told his son what Saibulinna the disease may bring. "Son, you have to bear a lot." Audrey said. "Mom, I can not walk away from her." Matt replied with tears.
Generally speaking, the younger the patient, the slower the progression of the disease. But Saibulinna's condition quickly deteriorated. She said the more people do not understand, Matt began acting as her interpreter. Came home from school every day, Matt put down the bags went straight Saibulinnuo home. They invented a symbolic language can understand each other. Saibulinnuo Matt told many things,http://demo2.8555.net/2037_9463/news/html/?48355.html, for example, she hopes to have their own children, like a mother does not want to die in his sleep ......
School summer holidays,http://bizkhan.tistory.com, Matt Saibulinna day stay. Saibulinnuo rarely go out, as long as she can not do something, Matt would not do it.
She has been blown eternal candle
By the end of August, Saibulinna entering high school. But less than a week, she was hospitalized for tracheotomy.
October 6, she was discharged home, Matt decided to do once she specialized homecoming. Saibulinnuo uncle has a garage. In "Haunted Homecoming" as the theme, Matt decorated with cobwebs and skeletons garage. In the two hours before the official start of the homecoming, Saibulinnuo was sent to the ball field.
When she entered the garage door, which had been her friends and family into a "Twilight" in the dream. Homemade strobe light illuminated the night sky was decorated as walls, red, black, white tricolor balloons hanging all over the place,scarpe hogan outlet, a candle stuck 16 on board made a big cake, has been ignited.
It plays coax, to blow out the candles Saibulinnuo. Saibulinnuo bent down, trying to blow out a breath, she may just slightly shook his candle. She straightened up and shook his head. Matt immediately stepped forward to comfort her. Together with the count of three people, blew out all the candles. She and Matt was also crowned homecoming king and queen.
She want to take time to enjoy life
Saibulinnuo use microblogging recorded fight with the disease. Saibulinnuo wrote: "I want to finish high school, college,http://lkk552.gotoip4.com/home.php?mod=space&uid=188745, find a job, get married and have children I do not like life now, but this is life."
Matt's parents see their son dying Saibulinnuo madly in love, they do this is very worrying. Matt always said, "When I got married and Saibulinnuo ......" And Saibulinnuo begun to call themselves zari.
Audrey told his son, and neither may Saibulinnuo married, not reality. But she made an alternative, you can feel the wedding by the way is called a "celebration of friendship," the. The ceremony was set at 20 November. Saibulinnuo told a visitor: "I feel good, while there is still time for me to enjoy life, do what you can do."
He became the heart, love of people
Saibulinnuo Select an ivory dress embroidered with gold pattern as the dress, a caregiver to help her long hair woven beautiful French braids. Matt escorted her into the garage. Beams installed on the Christmas lights, the walls studded with rose petals.
In the pastor's prayer sound, Saibulinnuo and Matt sat together hand in hand. When sworn to,peuterey prezzi, people around them in the middle. Matt turned to Saibulinnuo double hand in hand.
Matt says Saibulinnuo let him not caring from one person into a life goal, something to love in the hearts of people. He said: "around you always make me smile ...... I hope you, too." Saibulinna smile, could not help nodding.
Send her go, with love of melody
After the ceremony, Saibulinnuo condition suddenly deteriorated. November 29 midnight, Saibulinnuo grandfather phoned Matt called his best to visit. The next morning, accompanied by Saibulinnuo at Matt left this world.
Saibulinnuo 16th birthday wearing a dress when buried, Matt stood bedside send red roses. Saibulinnuo for their chosen funeral song sings: "If I died at a young age / put me in a bed covered with rose / sink into the river / Take me away when the sun has just risen, with love of melody . "
Now, Matt is still under study, "people getting cold" disease. He hoped that the establishment of a fund to commemorate Saibulinna. In the dream, he will call the name of Saibulinna time to time. Newspaper roundup Li Shan
Terminal illness took a year and a half of her life
In June 2009, Saibulinna ear pain began in autumn 2009, began not do sit-ups in December 2009, 89% of vital capacity of ordinary people, weight 48 kg in February 2010, reduced ability to breathe to the original 62% in 2010 In May, the weight dropped to 46 kilograms in July 2010, weighing only 42 kilograms in November 2010, only less than 40 kg body weight
The world's new 120,000 "getting cold" and every year
"Getting cold" syndrome in medicine known as amyotrophic lateral sclerosis (AmyotrophicLateralSclerosis, called ALS.), It is one of the world's top five terminally ill. The exact pathogenesis of this disease has not yet clear, so there is no effective treatment. "Getting cold" and is characterized by brain and spinal cord motor nerve cells (neurons) in the progressive deterioration due to motor neuron controls make our movement, speech, swallowing and breathing, muscle activity,louboutin uomo, and if they do not nerve stimulation , muscles will gradually shrink degradation, manifested as progressive muscle weakness and even paralysis, as well as speak, swallowing and breathing dysfunction, until respiratory failure and death. Generally very rapid progression of the disease, from the onset of symptoms began, the average life expectancy at 2--5 years.
Patients with the disease around the world, China had approximately 200,000. About 10 million people worldwide each have six patients per 100,000 population per year added two patients, approximately 120,http://www.autismecharente.fr,000 cases occur worldwide each year. "Gradually freeze people" age of onset from teens to eighties have, but late middle-aged (55-65 years old) is a high incidence of age. |
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發表於 2015-11-12 21:35:46
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