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British girl Hayley Ao Jinsi suffering from progeria, animal appears older than her mother. Doctors had predicted Ao Jinsi survive 13 years, but Aojin Si is past his 14th birthday. Which she published inspirational autobiography, about his unusual life.
British premature girl autobiography
Life is short
Last December, Ao Jinsi celebrated his 14th birthday. To commemorate his extraordinary life, she completed her mother with the help of inspirational autobiography, "prior to the time of old," about their own treatment, like their peers the same weariness, Starchaser mood and longing for the future.
Ao Jinsi 21 months old, doctors predicted she survive 13 years. Since the diagnosis,louboutin outlet italia, she often out of the hospital.
She writes: "My mother said the disease is rare, the world's 32 countries living with progeria 89 sick children, I was one of them."
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Although out inconvenient, she will sometimes invite friends to visit this neighborhood stores or sleeping out. The Internet has become a new window Ao Jinsi contact with the world. She opened her "Twitter" account, meet a lot of new friends. Special status had her seen a lot of stars.
Inner strength
Progeria symptoms include small stature, hair loss and late teething. British "Daily Mail" on the 11th published photos show,http://www.visitware.com, 14-year-old Ao Jinsi turbaned, but do not see the hairline, facial wrinkles, teeth missing. She said that his bodily functions equivalent to a 105-year-old.
Progeria,http://www13.plala.or.jp/gakuki3/cgi_bin/aska/aska.cgi?ol, also known as progeria children,orecchini tiffany, is a genetic disease, the patient's body during aging faster than normal 5-10 times, the appearance like the elderly, brittle bones,http://hz.ngvoc.com/home.php?mod=space&uid=168758, organs also quickly decline,nike running donna, causing physiological function decline.
Children progeria
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But Ao Jinsi refused to bow to fate. She,http://www.rockclimbing.com/cgi-bin/routes/jump.cgi, like go to school like their peers, although home exhausted every day. She writes: "I am not afraid of death ...... deep down,scarpe hogan outlet, I feel no different with others ...... I feel to have a future, I want to get married when they grow up."
Last April, the doctor told Ao Jinsi, facing her hip dislocation risk,http://www.chrisadamsperfumes.com/index.php?item/create_form/1, since she had to make people feel uncomfortable wearing all-weather support.
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Qiao Ying (Xinhua News Agency feature articles)
Progeria incidence rate of 1/8000000, children suffering from this disease usually only live to 7-20 years, with an average life expectancy 13 years,http://www.nigeriannewspapers.us, mostly from diseases of aging, such as cardiovascular disease.
Christa said: "The removal of progeria, Hayley just like any teenager, like a naughty ...... I proud to Hayley matter how much injustice fate to befall her head, she can equanimity.." & Nbsp;
奥金斯 is the first to accept the new immunosuppressant drug everolimus treatment in children. The drug inhibits premature cell mutation, effective in mice body. Her young age, but also to endure the torture of arthritis, morning and evening,http://www.zhuzhou.com/home.php?mod=spacecp&ac=blog&blogid=, a lot of medication.
Ao Jinsi live in East Sussex Bexhill. Her body does not grow after birth, does not increase body weight, mother daughter Christa realize where the problem is, that after a doctor Ao Jinsi with progeria. |
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發表於 2015-6-22 22:59:26
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